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search this site navigation home what is cystinuria ? ... tell me more how did i get it ? what will happen to me ? who should treat me ? symptoms of stones tests what can i do ? treatment prevention surgery diet - what should i eat ? diet ...tell me more recipe books cookery course patient day latest publications relevant links contact/ feedback home whats new ? the next patient day will be held on saturday 30th march 2019. details and the provisional programme can be viewed here - patient day . recruitment of patients onto the rare renal registry is going well. please check with your specialist whether your data has been entered (you will have been asked for consent). our recent publications: stones: predicting stone episodes using cystine capacity - refers to this article in the journal of urology from professor pearle associating mutations causing cystinuria with disease severity with the aim of providing precision medicine. bmc genomics 2017 can presence of crystals in the urine predict stone formation. j endourol 2016 the role of protein modelling in cystinuria. eur urology 2016 follow us on twitter @ this website was written and designed by a group of interested health care professionals and patients, all of whom felt that the current information on t he web about cystinuria w as limited, confusing and not particularly orientated to british patients. it has been designed to provide clear and concise information for cystinuric patients and/ or their friends and family. our aim is threefold: to help patients develop a better understanding of cystinuria. to offer specific information about the investigation and treatment of cystinuric stones. to improve the non-surgical management of stones, and in particular to improve efforts to prevent stones through changed diet. patients often have common themes to their presentation but because the disease is rare, may not meet other affected individuals, and so are unable to share their stories. if you feel that anything is incorrect or if there is anything you would like to see on the this website then please contact us and let us know what you think via the contact/ feedback form. the website has been written and designed by healthcare professionals from guy's and st. thomas' nhs foundation trust with significant contributions from several patients who wish to remain anonymous. the team at miss kay thomas , consultant urological surgeon "i have a specialist interest in cystinuria and in particular the preventative measures which may be useful in helping patients have some control over the impact of their disease. i established a multi-disciplinary specialist clinic for cystinuria which has led to the development of this website. " mr matthew bultitude, consultant urological surgeon disclaimer: all the information contained on this website is for education and information only. this does not replace advice from an appropriately qualified doctor. if you are unwell or require medical advice, help or treatment you should consult your doctor or urologist. whilst we have taken every care to ensure that the information contained in this website is accurate, complete and up-to-date, we cannot guarantee this. links from this site to other websites are provided for information and convenience only. we cannot accept responsibility for their availability or the information they contain. we do not endorse any particular sites. copyright: all material on this site is subject to copyright © . you may not reproduce any content from this website without obtaining permission from the authors. last updated: august 2018 sign in | recent site activity | report abuse | print page | powered by google sites

URL analysis for cystinuriauk.co.uk

http://www.cystinuriauk.co.uk/medical-treatment
http://www.cystinuriauk.co.uk/treatments-for-stone
http://www.cystinuriauk.co.uk/what-will-happen-to-me
http://www.cystinuriauk.co.uk/diet---what-should-i-eat
http://www.cystinuriauk.co.uk/latest-publications
http://www.cystinuriauk.co.uk/website-feedback
http://www.cystinuriauk.co.uk/website-feedback
http://www.cystinuriauk.co.uk/who-should-treat-me
http://www.cystinuriauk.co.uk/diet-tell-me-more
http://www.cystinuriauk.co.uk/what-is-cystinuria
http://www.cystinuriauk.co.uk/home/cystine5%20-%20copy%20%282%29.jpg?attredirects=0
http://www.cystinuriauk.co.uk/cookery-course/relevent-links
http://www.cystinuriauk.co.uk/patient-day
http://www.cystinuriauk.co.uk/surgery
http://www.cystinuriauk.co.uk/families-and-cystinuria
guysandstthomas.nhs.uk

Whois Information

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Error for "cystinuriauk.co.uk".

the WHOIS query quota for 2600:3c03:0000:0000:f03c:91ff:feae:779d has been exceeded
and will be replenished in 54 seconds

WHOIS lookup made at 13:02:42 17-Aug-2018

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS cystinuriauk.co.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME cystinuriauk.co.uk

NSERVER

  NS2.EASY-INTERNET.CO.UK 94.76.247.150

  NS1.EASY-INTERNET.CO.UK 81.27.85.4

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